by Dr Craig
Yesterday, I sent the link to my ALS/SOS (Simplicity of Stillness) study participants for the pre- intervention questionnaires, after a final review. I have so many projects going on simultaneously! There could be substantial work involved in the management of getting all participants to complete questionnaires on a timely basis and provide home mailing addresses so that we can mail study CDs and get the 8 week intervention started. This study will occupy much time in coming months as well.
Meanwhile, I need to coordinate the Michigan film shoots with renowned New York documentary filmmakers. The next couple of weeks, I am also highly involved in fighting for legislation in Michigan that will protect the rights of consumers to consult with nutritional professionals of their choice vs. monopoly. I may even request a private meeting with the chair of the regulatory committee, or go to a hearing. I am so excited about the possibility of my healing journey making a positive political difference in the health of the people of the state of Michigan and the Michigan economy. I have asked my Mother to go to the capital to testify, and she said “Yes”! We want to make a difference with our healing journeys.
I am also working with the co-founder of THE HEALERS campaign, Carl Polonyi, on developing commerce for the ALS scientific research campaign because I do everything on a volunteer basis. In the meantime, I have invest great time in fundraising for my basic needs.
Dr Francesco Pagnini and I have data from an ALS study that we conducted that needs to be written up for publication, yet I would like to put my collaboration with University of Brasilia researchers before that study; I will soon send the researchers in Brazil the incomplete questionnaire I am developing for our study, for their review. I am so excited to move forward on that study.
At the same time, I have all the work of managing 24/7 caregivers, and I am in a hiring process for a key position. This is quite a process and energy consuming.
I also have people with ALS from around the world who write me for help. There are so many more responsibilities I have in managing THE HEALERS campaign, and with writing articles and communicating with guest authors. I am also working with PBS, a TV show in Texas that wants to dedicate an episode to me, and a Hollywood producer who is trying to get me my own reality TV show. Meanwhile, everything I do is on a volunteer basis.
Sometimes, I feel stressful pressure in my body, by how much work I have building THE HEALERS scientific research and holistic health educational campaign, while needing to give significant time to fundraising activities. I do most of it with one finger typing, taking 10 hours to get about 2-3 hours of work accomplished. I actually suspect that unsustainable stress on the nervous system, factors into the etiology of ALS along with other factors. I have tools to find peace, including my daily prayers which involve an hour or more time. I feel like I am walking a very thin line, attempting to build THE HEALERS campaign to the point that I will be able to support myself and my expensive caregiving needs, by being compensated for all the work I am doing to advance ALS research and the health education of the United States.
I welcome your prayers and support.
With love and gratitude,
Craig Oster, PhD