ALS Testing Protocols

My name is Roger Bonati, I'm 53 years old and married with 2 daughters, 8 & 11. I've always wanted my own family so when my doctor told me to get my affairs in order a month before my younger daughter was born, I wasn't having it. I've lived on various parts of long island, new York my whole life. I was diagnosed with ADHD back when it was called “oh boy your kid is hyper”, I was 7. I’m an electrical engineer and have worked for the collider-accelerator department at Brookhaven national laboratory since 1988. I've been an engineer since I was a child, always fixing things or building contraptions that would scare my parents. my family was very hands on so growing up I always being taught how to figure things out and make repairs. throughout school I worked a large variety of construction jobs. this added to my training because I never needed a contractor for anything, I'd fix everything myself. I always use to keep a large bag of tools in the back of my truck and would frequently fix things for my family and friends free of charge, it was fun for me. I've always been a very active person and enjoyed a variety of outdoor activities including biking, skiing on large mountains, and hiking. always being able to fix everything adds to the frustration of the doctors telling me there's nothing we can do, I'm not use to that.