Invitation to People with ALS to the Harvard University Online ALS Study

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 Note from Dr Craig Oster about the Harvard University Online ALS Study Invitation 

I am grateful to invite people with ALS to consider participating in the Harvard University Online ALS Study, of which I am a co-investigator with the researchers at Harvard University. At the end of the study, we will provide a thorough explanation of the study and of our hypotheses. We will describe the potential implications of the results of the study both if our hypotheses are supported and if they are disconfirmed. If you wish, you can send an email message to Dr. Francesco Pagnini (francesco.pagnini@unicatt.it) and we will send you a copy of any manuscripts based on the research (or summaries of our results). Individual feedback may also be requested.

Invitation to People with ALS to the Harvard University Online ALS Study

The Langer Mindfulness Lab, from the Department of Psychology of the Harvard University is conducting a research about some psychological aspects of ALS, as well as the physical challenges. The study can be very valuable to better understanding unexplored issues of the illness and to design new interventions that will improve the quality of life of people with ALS and their caregivers.

We cordially invite people who have ALS, together with their closest relatives who live with them, to join this study. Study participation is voluntary. People who will join the research will receive full debriefing with personal results and the chance to join a lottery for $100. To join the study, just open the following link: https://harvard.qualtrics.com/SE/?SID=SV_bP0btl42eW9uorX

For more information, please contact Dr. Francesco Pagnini (francesco.pagnini@unicatt.it).

 

Purpose of the research: To examine the relationship between quality of life, physical impairments, psychological and social variables in people with Amyotrophic Lateral Sclerosis (ALS), with the support of their primary caregivers.

Time required: Participation will take approximately 10-15 minutes to complete.

Risks There are no anticipated risks associated with participating in this study. At worst, you may experience a very quick mood fluctuation (e.g. get nervous for a minute).

Benefits: At the end of the study, we will provide a thorough explanation of the study and of our hypotheses. We will describe the potential implications of the results of the study both if our hypotheses are supported and if they are disconfirmed. If you wish, you can send an email message to Dr. Francesco Pagnini (francesco.pagnini@unicatt.it) and we will send you a copy of any manuscripts based on the research (or summaries of our results). Individual feedbacks may also be requested.

To join the study, just open the following link: https://harvard.qualtrics.com/SE/?SID=SV_bP0btl42eW9uorX

For more information, please contact Dr. Francesco Pagnini (francesco.pagnini@unicatt.it).

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